Ethan 28 mo old possible ASD?


Ethan 28 mo old possible ASD?

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Ethansmommy2014
Ethansmommy2014
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Hi my name is julia 36 Yrs old with 3 kids Hailee 18 NevAn 7 Ethan 28 mo. I am here to look for Some suggestions and support.  My son Ethan has been referred to a pediatrician by our Dr..and he's In speech therapy and im taking courses..and trying my best to help him and understand why he isn't only not talking ..but the communication and interaction  is different ..and very rare. He is showing about 90% traits of autism...i feel it would be high functioning or mild to moderate. Im not a dr so im Just doing the best I can as his mother. I keep blaming myself ...and thinking about anything i did wrong or different than with my other two kids. If anyone has any good articles or info on asd plz post for me..also and suggestion s and support would be good. Im Not sure also what to expect at the pediatrician and would like to have some Insight on what to expect so that I know before I go. I dont want son to be misdiagnosed either way. Im also writing things down for the Drs.. Ty. I wrote a thread few days ago but can't find it.

sbmjmum
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Hi Julia,

Firstly, well done on getting your son assessed through a Paediatrician. Early intervention is crucial for ASD toddlers. Please do not blame yourself. You have not done anything wrong. My son was diagnosed with Autism at 20months. He too was showing signs of Autism early on so we went to our Maternal health nurse and long story short got referred to a paed, then referred to an ASD specialist paed then a speech pathologist for a formal assessment and finally back to the specialist paed for the official diagnosis this process took roughly 3-4months mainly due to us being out of the country. It was straight forward and relatively easy just the wait times for the next appointments were hard because we just wanted an answer. Ask lots of questions ensure there is clear communication between you, your paed and speech therapist so you are aware of whats going to happen and when and really just so you know yourself what will occur going fwd so you don't get any sudden surprises or receive a diagnosis unprepared etc

All I can say from experience is to never give up. No matter the outcome work hard on the delays amd/or struggles your son is having. The earlier the better. Your speech pathologist can give you strategies to use at home as will your paed. You can do loads of research online for tips and tricks. There is also ECIS Early Childhood Intervention Services, AMAZE, My time groups and various playgroups. You can do so much without a diagnosis which is awesome. Having the diagnosis merely opens doors to funding that your paed can walk you through should your son get diagnosed.

You are not alone in this journey and I wish you and your family the very best. Ensure you surround yourself with a good support network as it can be very trying and tiring at times but never forget that you have a special little boy who will bring so much joy Smile no matter the struggle you go through on this journey seeing him smile and progress will truly make your day!


ZidDad
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Hi

I am a father of 3. My youngest son has been diagnosed with ASD today. I dont know where to start with. I want to start his Early Interventions, Speech and OT. I believe I have to register with Autism Spectrum first, and with NDIS as well. I dont know anything about the funding, and also if all these funding will be enough to get him sufficient interventions. What woudl be the best way therapies / methods / fundings for him to start him please...

After reading these forums today, I understand most of the parents are now on Facebook. I tried looking for the group Creative Minds, but cant find the relevant one. I dont know how to find the closed group and how to request for joining.

Help and advice would be highly appreciated.

ZidDad
sbmjmum
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ZidDad - 4 December 2016 1:01 AM
Hi

I am a father of 3. My youngest son has been diagnosed with ASD today. I dont know where to start with. I want to start his Early Interventions, Speech and OT. I believe I have to register with Autism Spectrum first, and with NDIS as well. I dont know anything about the funding, and also if all these funding will be enough to get him sufficient interventions. What woudl be the best way therapies / methods / fundings for him to start him please...

After reading these forums today, I understand most of the parents are now on Facebook. I tried looking for the group Creative Minds, but cant find the relevant one. I dont know how to find the closed group and how to request for joining.

Help and advice would be highly appreciated.

ZidDad

Hi ZidDad,

Firstly, welcome to the world of ASD. I'm sorry you haven't had much luck re information and knowing where to seek help.

How old is your son that was just diagnosed and which state are you from? I too am new to this journey. Our son was only diagnosed in August at 20mnths and is now 2 Smile We have the best Paed who gave us all the information we needed to get started.

Do you see a paediatrician for your son? I'm no expert but here is some info from our journey thus far that might be of assistance.

Ok so if you do have a Paed you see regularly or even a Family GP they will be able to recommend some good Therapists in your area. They can be costly however some do accept the medicare plan/medicare rebate I would ask your GP about this to get more precise info. Now that you have your diagnosis (keep the diagnosis statement safe) you will be able to apply for the FAHCSIA Funding or Helping Children with Autism Funding which is off the top of my head $12k until your child turns 6 or the day before their 7th birthday but you cannot use more than $6k in one financial year. You can simply download an application form through AMAZE or contact them for help and they will arm you with everything you need to know including eligibility and process. You should also now be eligible for the Carer's allowance through Centrelink. If you still see a maternal health nurse or through your GP/Paed you can enquire about Early Childhood Intervention Services (ECIS) the wait times are long roughly 6-12mths and is funded by the Dept of Education. We are still on the wait list for this service (approx. 7mths now) but an application has to be put fwd to them through your MHCN, Paed or GP.

There are various playgroups you can join for your son but My Time group sessions are aimed at Parents and is a great opportunity to meet other parents on the same journey as you and also a chance to get some beneficial information.

You can also learn A LOT just using google Smile there are numerous blogs and online information you can browse through. Especially if you have a few questions and want/need them answered immediately.

I hope this information makes sense and at least gives you a little bit of guidance. I'm not on facebook so I'm not sure about the private group sorry hopefully someone else can assist you with that.

I wish you and your family all the best on this new adventure. It is no doubt a roller coaster ride at times but very rewarding too. 

God Bless!





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