By EllaSweet - 01/03/2017
This morning I received a text from the school, simply stating "Your son arrived late to school this morning. Could you please ensure that he arrives promptly at 8.35 as lessons commence at 8.40. Kind regards, *school name*
This is the email that I have written to the principal, but not sent. I am unsure if i will send it, but I really do think something should be said.
I have attached a copy of the text message that I received this morning, as I was deeply upset by this. This morning I told my son to get out of bed and get ready for school. He refused. I shook him. He yelled at me. I tried to drag him out of bed. He fought me. I threatened him, bribed him, blackmailed him. He refused. I informed him of the consequences, he didn't care. I did everything in my power to get him up and to school on time. But this is still not good enough, is it?
When my son started at *school name* in 2014, he struggled a lot. He has ASD and what comes easily to us, is a daily struggle for him. I tried to work with the teachers, but I when I was told by my son's mentor teacher that I needed to quit my job as it was my responsibility to be there at the end of the day to ensure *son's name* was bringing all of his things home, I had enough. I removed *son's name* from the school, as it obviously was not a good fit for him, or for me.
*son's name* struggled even more learning at home. Without the regular class times, he found it hard to commit to regular study. As the following year both my daughter and other son would be at *school name*, I decided to give the school another try with *son's name*. This worked well for a time, especially with the high level of support we received from *special ed teacher*
The lack of support from teachers and other staff, however, has been less than acceptable. I was repeatedly told that if there were any problems, I would be contacted. If *son's name* was struggling, they would let me know. They did, technically, in the form of failing report cards - but of course by then it was too late. The majority of assignments he failed was when he was required to complete work on them from home. I went to the parent teacher evenings. I met with every one of his teachers and asked for one simple thing from each of them - to let me know when he had assignments due so I could assist him at home and ensure he was handing his work up on time. Out of the 10 teachers he had last year that I met with, ONE was able to do this for me. Not surprisingly, he did well in that subject.
Every day here is a struggle. It affects my life greatly, and the health and well-being of my other children. But we go on trying. I do my best. I can not possibly do any more than I do. So when a text like this comes through, especially after the morning I had trying to get him to school, I feel angry, upset and humiliated. Like I have failed again.
Can I also just mention that this is the first time he has been late this year? At the very least have a go at me when he is consistently being late. I'm also happy to accept any advice on how I can get him to school in the future, as it seems to be really easy for you?
In summary, I am doing my best. Are you?
I am angry and upset still. Every time someone says or even hints that he should just do things because all the other normal kids do those things, like get to school on time, it's a kick in the guts and a reminder that he's never going to be like everyone else, and he is always going to struggle with some things. He also has pretty bad insomnia at the moment and is sleeping 2 - 4 hours per night. He is almost 17, and in year 11 at school. I am at my wit's end. I even got to the point late last year where I couldn't go on and tried to put him into foster care. I couldn't, because his father who hasn't seen him for two years, technically still has some custody (no orders, just has custody because apparently he's a parent) and wouldn't sign the papers. He wouldn't take the kid and help me out, either, but hey, he's a parent with rights.
I don't know or care if anyone reads this. I do feel better for getting it out there. I'm happy to give the back story, as it's been a wild ride! Started getting concerns around age 7. Told by his father that there was nothing wrong with him (father still believes there is nothing wrong him - we got three diagnoses saying otherwise). Eventually stopped listening to his father and decided to seek diagnosis. Saw three different GPs before one of them gave me a referral. The first two asked my son three or four questions and said he was fine. The referral was sent to the pediatric department of the public hospital. Told it could be up to 18 month wait. We were able to get into a private pediatrician with a three month wait, so went with that just to start getting some help. He was first diagnosed as Aspergers by this pediatrician at age 10. Then started the wait to get the second diagnosis that we needed. Call hospital every month - they just said to wait. I eventually wrote an email to the health minister saying that the waiting time was ridiculous. Shortly after I received an apology from the hospital - they had lost the referral and despite over a dozen calls to the hospital to see where he was on the waiting list, he had never actually been put on the waiting list. He was bumped up the list and a few months later we had an appointment for a second diagnosis. Unfortunately the second appointment ended up being with another pediatrician, and as we needed two different specialists, we still didn't have an official diagnosis. Another six months later and an appointment with a psychologist (I think it was?) and we were officially diagnosed and could get assistance. I was told to "not bother" getting assistance because by this stage it was less than two weeks until my son was turning 13, and any help I could get cut out at the age of 13 - by the time I had the appropriate meetings and filled in the paperwork it would be too late to get any help. I've been doing it all on my own since then - reading up, dealing with teachers, helping wherever and however I could. The NDIA - the agency here in SA which gives funding to ASD kids among others - is rolling out slowly and by the end of the year, or shortly before my ASD child officially becomes an adult, he will finally be able to get assistance. Like I said, wild ride.
By skatergirl08 - 16/12/2017
What a powerful letter you have written , comes from deep down !!
More Parents should write like this !! its helps to Seet a bigger outlook of what you are going through .
Children /teens who have problems are harder work for Parents who have to cope with it all.
You will have to write down a list of problems first...
Do research about certain diagnosis of what the child is showing..
Check and research" FIRST " Medication outcomes , good and not so good of drugging the Child .
Try and not over load yourself with all different services and their so called experts on the subject (remember not everyone is
trained ,best at their field)
slowly do not rush into quick fixes these children /young teens needs the "white glove treatment"
take your time ,,,,do plenty of research .Get back to basic FOOD REASEARCH !!
Maybe move from where you are (change of home/town can make a different to services and" SCHOOLS"
Start again, fresh will give the family some much needed time out.
If you cannot move "Take a Holiday and rewind from stressful " school , work, dealing with the professional "
and get back to basic....spend time with the family and have a chat of where they see you all heading to !
TALK ,TALK TOGETHER , FEELINGS NEED TO BE IN THE OPEN.......MAKE A SPEAKING STICK (NO HAVENT LOST
MY MIND LOL LOL ) WHEN ITS THERE TURN TO TALK (THE PERSON HOLDING THE STICK) THEY CAN
EXPRESS THEMSELVES WITHOUT TRYING TO OVER TALK EACH OTHER. THEY USE THEM A LOT IN USA .
TEENAGE LIFE SKILLS CAMPING GROUPS ' TEENS WHO HAVE LOST THEIR WAYS " .
IT WORKS .... LISTEN TO EACH OTHER 'S CONCERNS BARE ALL ....FUNNY OR STRANGE AS IT SOUNDS
TEENAGE CHILDREN NEED THAT OUTPUT. LISTEN AND LEARN AND GUILD AS BEST AS YOU CAN . CONNECT WITH THE CHILD LIKE "THE FIRST
MINTUE HE OR SHE WAS BORN , FEEL THE LOVE AND STRONG BONDING YOU HAD WITH THEM, THEN ONLY THEN WILL
YOU BE ABLE TO STEP FORWARD AND GO TOWARDS WORKING TO OVERCOME THESE MAJOR PROBLEMS .
YOU WILL SEE WHAT I MEAN !!!! CONNECT WITH THEM THEY NEED YOU AS A MENTOR AND AS PARENT.
HAVE A WEEKEND AWAY AND ENJOY EACH OTHER !!! COME BACK AND MAKE A PLAN TO CHANGE
THIS IS SO STRESS FOR YOU !!! I REALLY LOVE READING YOUR POST , I FEEL HOW YOU MUST STRUGGLE TO SEE THE LIGHT SO TO SPEAK.
ITS OUT THERE !! TAKE A FEW STEPS BACK AND LOOK FORWAD !! ITS THERE !!
HUGS KIND REGARDS SKATERGIRL08