Choosing the best services and providers for your child might seem difficult, but planning your approach will help you work through the options. And remember – the most important thing is the needs of your child and family.
The family plays a very important role in the care of a child with a disability. A lways look for services that take your family’s unique circumstances and needs into account.
Use this search to read a brief explanation of disability terms as well as definitions of the disability professionals you may encounter.
Go to Disability ReferenceIn an average year, families with a child with a disability have contact with at least 10 different professionals and attend at least 20 appointments at hospitals and clinics. You may work with some professionals for just a short time, and have a long-term relationship with others.
Most families will see several providers, including general practitioners, paediatricians, speech pathologists, physiotherapists, dieticians, psychologists and social workers. Each one specialises in a particular area, but sometimes their roles overlap.
If you have not already been referred to a service or provider, look for recommendations from healthcare professionals or service providers. It might help if you work from a list of the relevant services in your area. Find out if the service is part of an accreditation system, if it is accredited and has a good reputation.
Contact the service and get as much information as you can, such as:
If you have time, try to meet with the service provider face-to-face, rather than over a phone call. You can get a better feeling about the service this way and more information. Read our tips on meeting with services and professionals.
When you’re looking at different services, consider these practical questions:
If you are in a position to choose between a government service provider and a non-government service provider, such as a small community-based organisation, base your decision on what best suits your child and your family.
Parents have found that the most satisfactory service providers have the following five characteristics.
1. Family-centred
This means they:
2. Developmentally appropriate
This means they:
3. Coordinated
This means they:
4. Technically competent
This means they:
5. Interpersonally competent
This means they:
The services that are best for you and your child depend on your child’s and family’s particular needs. When you’re deciding on a service or provider, consider:
You could draw up a list of ‘pros and cons’ to help you decide which service provider is right for you. And you’re entitled to get further opinions from other service providers if you have doubts about the choice you’ve made.
The relationship with the service may affect the whole family, so it’s worth getting input from your partner and other family members as well.
Health information contacts in Australia | ||
| State | Service | Phone number |
|---|---|---|
| ACT | Health First | (02) 6207 7777 |
| NSW | NSW Health | (02) 9391 9900 |
| NT | Department of Health and Community Services | (08) 8999 2400 |
| Qld | Queensland Health | (07) 3234 0111 |
| SA | Department of Human Services | (08) 8226 8800 |
| Tas | Department of Health and Human Services | 1800 067 415 |
| Vic | Better Health Channel | 1800 126 637 |
| WA | Health Direct WA | 1800 022 226 |
Abbott, D., Watson, D., & Townsley, R. (2005). The proof of the pudding: What difference does multi-agency working make to families with disabled children with complex health care needs? Child & Adolescent Social Work Journal, 10, 229-238.
Agency for Healthcare Research and Quality. (2001). Your guide to choosing quality health care. Retrieved April 27, 2007, from http://www.ahrq.gov.
Brown, M. (2002). Health-care choices - the right of all Australians. Retrieved May 11, 2007, 2007, from www.regional.org.au/au/rrh/2003/brown.htm?print=1.
Centre of National Research on Disability and Rehabilitation Medicine (n.d.). Choosing a service provider. Retrieved 20 April, 2007, 2007, from http://www.disabilitylifestyles.org.au/index.html?page=15394&pid=0
Disability Services Act 1986 (Cth) http://www.comlaw.gov.au/ComLaw/Legislation/ActCompilation1.nsf/0/63FB5EAAAE5149B4CA2572C3000F3893/$file/DisabilityServices1986WD02.pdf current to Act No 65 of 2007 (27 April 2007)
Ireys, H., & Perry, J. (1999). Development and evaluation of a satisfaction scale for parents of children with special health care needs. Pediatrics, 104(5), 1182-1191.
Moore, T. & Larkin, H. (2005). More than my child’s disability. A comprehensive literature review about family-centred practice and family experiences of early childhood intervention services. Glenroy, VIC: Scope (Vic) Ltd.
The Australian Council for Safety and Quality in Health Care. (2004). 10 tips for safer health care. Retrieved 11 May, 2007, from www.health.qld.gov.au/quality/publications.asp
Content funded by NSW Department of Ageing, Disability and Home Care